To be the primary cystic fibrosis support group and be the driver of advocacy for the treatment of cystic fibrosis in South Africa.


  • To create a unified national body representing and communicating with all cystic fibrosis families
  • To increase nationwide awareness of cystic fibrosis and so promote early diagnosis
  • To maintain a medical advisory group and create any other groups necessary for promoting advocacy for cystic fibrosis treatment.


  • To disseminate information to the public on cystic fibrosis via various media channels
  • To communicate effectively with the all CF families starting shortly after diagnosis
  • To ensure that all cystic fibrosis patients have access to treatment of a high standard
  • To support the work done by our medical advisory group as well as any other advocacy groups
  • To assist in keeping medical staff up to date with latest advances in treatment
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