The South African Cystic Fibrosis Registry – Report 2023

The fourth edition of the annual South African Cystic Fibrosis Registry marks another significant milestone in our collective journey to improve the lives of people with CF in South Africa. As the CF landscape continues to evolve, particularly with the advent of CFTR...

The CF Registry – Annual Report 2021

This third edition of the Cystic Fibrosis Registry Annual Report represents a great achievement for the South African Cystic Fibrosis (CF) community, who initiated the registry project in 2018. The  relevance and importance of the registry and the information we...

What makes CF Patients Rare?

#ShareYourRare In conjunction with #raredieseasemonth, SACFA thought we would explore what makes Cystic Fibrosis patients, and the disease, rare. If you haven’t heard of Cystic Fibrosis (CF) you can find more information on it on our website using the following...

A reminder to adult CF patients who attend CMJAH

To all those who historically attended the CMJAH Adult Cystic Fibrosis Clinic at Ward 496, please book follow up appointments at the CMJAH Adult Respiratory Clinic.  This is a general respiratory clinic but you will be seen by a pulmonologist, have your medication...