Virtual 6.5km Challenge for Cystic Fibrosis

Support the South African Cystic Fibrosis Association by walking, running or riding 6.5km! Buy your ticket during the month of October and share your video, photo or virtual racing app screenshot on our social media.Date: 1 – 31 October 2022 Per person:...

What makes CF Patients Rare?

#ShareYourRare In conjunction with #raredieseasemonth, SACFA thought we would explore what makes Cystic Fibrosis patients, and the disease, rare. If you haven’t heard of Cystic Fibrosis (CF) you can find more information on it on our website using the following...

A reminder to adult CF patients who attend CMJAH

To all those who historically attended the CMJAH Adult Cystic Fibrosis Clinic at Ward 496, please book follow up appointments at the CMJAH Adult Respiratory Clinic.  This is a general respiratory clinic but you will be seen by a pulmonologist, have your medication...

The CF Registry – Annual Report

It is with great pride and a collective sense of achievement that we present the SA CysticFibrosis Registry report for 2019-2020. The collection of data for this period coincided witha time in which healthcare provision and services for people with CF were severely...

Update on access to Trikafta from CFNFC

The CFNF Committee has been engaging with Vertex and various stakeholders over the past twelve months to ascertain the affordability and access to Vertex’s modulator treatments, namely Trikafta and Kalydeco. The last engagement was held on the 23rd of September,...
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