The 2023 Cape Town Cycle Tour, previously known as the Cape Argus, had two rare cyclists this year, Jason van’t Slot and Carmen Möller. Both have been diagnosed with cystic fibrosis, a rare inherited genetic disease that affects multiple organs in the body, primarily...
Hello – I am Dayyaan I turn 18 on the 5th July this year, and I have Cystic Fibrosis. So does my brother, Daniywal who is 13 years old. I live in the Western Cape, Surrey Estates, and presently attend Greenpoint Salesian Institute. I have many, many interests…...
Members of the CF New Frontiers Committee (CFNFC) engaged in a meeting with representatives from Vertex Pharmaceuticals on 16 September 2020. Representing South Africa on a national level, the CFNFC attendees consisted of doctors specializing in paediatric and adult...
How are you dealing with the pandemic? Do you find you are having up days and down days? We as people with Cystic Fibrosis are used to so much that the normal population are not. We wear our masks for hospital visits, we wash our hands and avoid sick people as a norm...
Having CF, or a family member with CF, can be a journey filled with uncertainty, anxiety and sometimes loneliness. Having a way to connect with others, who may be going through similar experiences and emotions, can provide a lot of comfort and support during tough...
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