Living with cystic fibrosis (CF) in South Africa can be challenging, but it also makes us unique. There are roughly 550 people who have been diagnosed with CF, though this figure may be slightly higher due to patients being undiagnosed or misdiagnosed in the past when...
#ShareYourRare In conjunction with #raredieseasemonth, SACFA thought we would explore what makes Cystic Fibrosis patients, and the disease, rare. If you haven’t heard of Cystic Fibrosis (CF) you can find more information on it on our website using the following...
To all those who historically attended the CMJAH Adult Cystic Fibrosis Clinic at Ward 496, please book follow up appointments at the CMJAH Adult Respiratory Clinic. This is a general respiratory clinic but you will be seen by a pulmonologist, have your medication...
It is with great pride and a collective sense of achievement that we present the SA CysticFibrosis Registry report for 2019-2020. The collection of data for this period coincided witha time in which healthcare provision and services for people with CF were severely...
The CFNF Committee has been engaging with Vertex and various stakeholders over the past twelve months to ascertain the affordability and access to Vertex’s modulator treatments, namely Trikafta and Kalydeco. The last engagement was held on the 23rd of September,...
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