The fourth edition of the annual South African Cystic Fibrosis Registry marks another significant milestone in our collective journey to improve the lives of people with CF in South Africa. As the CF landscape continues to evolve, particularly with the advent of CFTR modulator therapies, this registry has become an indispensable tool for monitoring trends, evaluating the impact of new treatments, and advocating for equitable access to care.
This year’s report delves deeper into the transformative power of CFTR modulators, highlighting their impact on patient outcomes and quality of life. By analysing real-world data from the registry, we aim to contribute to the global body of knowledge on CFTR modulator therapies and inform evidence-based clinical practice.
We extend our heartfelt gratitude to the dedicated healthcare professionals, researchers, and, most importantly, the CF community who have contributed to the success of this registry. Your commitment to sharing valuable data is essential to advancing CF care in South Africa.
As we look to the future, we remain steadfast in our mission to ensure that every person with CF in South Africa has access to the highest quality care, regardless of their socioeconomic status. By continuing to collect and analyse data, we can advocate for policies that prioritise the needs of the CF community and drive positive change.
We hope that this report will inspire continued collaboration and innovation in the field of CF research and care. Together, we can build a brighter future for people with CF in South Africa.