Beautiful farewell letter by a very special Doctor

Beautiful farewell letter by a very special Doctor

My story – Dr Sue Klugman I joined the paediatric CYSTIC FIBROSIS clinic in 1989 as a very part time job, for four hours a week ,when the clinic was short staffed and needed an extra pair of hands. The whole field was new, strange and overwhelming  to me. When Dr...
Ndumiso’s Story (part 2)

Ndumiso’s Story (part 2)

(Continued from part 1) Work and social life As we all know CF is a very challenging condition it needs someone who is financially stable. It affects you mentally and emotionally and it needs you to be strong and accept it and learn to live with it. I struggled a lot-...
Ndumiso’s Story (part 2)

Ndumiso’s Story (part 1 of 2)

Ndumiso is from Zimbabwe, he now lives in Johannesburg, and is the first black CF person to join the CF Association. Ndumiso’s story is very enlightening and shows his strength and bravery through adversity. He has been brave enough to write in English, which is...
A first chance at life after transplant- Fawn Rogers

A first chance at life after transplant- Fawn Rogers

Hello, I’m Fawn, Cystic Fibrosis owner, double lung transplant recipient and lover of life.    I was born in Zimbabwe but I was the only CF patient in the country and had to travel often to see specialists and get my meds from SA. I eventually...
CrossFit changed my life! – Louise Coney’s CF story

CrossFit changed my life! – Louise Coney’s CF story

Where my story began I was diagnosed with Cystic Fibrosis at birth when I was born with a meconium Ileus, with the delta F508 mutation. My parents were told I would live till I was 7 years old….both being Engineers, and determined individuals, they decided to...
Guilt ridden CF mom

Guilt ridden CF mom

Click The day my twins were born, something else was born too. It is a different kind of love. It is deeper, and it feels different. It is as if my heart is running outside my chest. Nobody could ever prepare me for how much motherhood will change me. But with that,...
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