The 2023 Cape Town Cycle Tour, previously known as the Cape Argus, had two rare cyclists this year, Jason van’t Slot and Carmen Möller. Both have been diagnosed with cystic fibrosis, a rare inherited genetic disease that affects multiple organs in the body, primarily...
May is Cystic Fibrosis awareness month and we want to tell you more about the South African Cystic Fibrosis Association by asking Alan Dunn Chairperson of SACFA and SACFA Central Region (Gauteng) a few questions. Alan has been part of SACFA Central region since 1990,...
Hello – I am Dayyaan I turn 18 on the 5th July this year, and I have Cystic Fibrosis. So does my brother, Daniywal who is 13 years old. I live in the Western Cape, Surrey Estates, and presently attend Greenpoint Salesian Institute. I have many, many interests…...
There is currently no cure for Cystic Fibrosis. While there are a lot of medical breakthroughs, treatment mostly involves trying to stop the progression. In South Africa, we do not have access to the latest modulator treatments that slow down the progression (yet)....
My story – Dr Sue Klugman I joined the paediatric CYSTIC FIBROSIS clinic in 1989 as a very part time job, for four hours a week ,when the clinic was short staffed and needed an extra pair of hands. The whole field was new, strange and overwhelming to me. When Dr...
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