My story – Dr Sue Klugman I joined the paediatric CYSTIC FIBROSIS clinic in 1989 as a very part time job, for four hours a week ,when the clinic was short staffed and needed an extra pair of hands. The whole field was new, strange and overwhelming to me. When Dr...
Jason van’t Slot, a Cystic Fibrosis warrior, extreme cyclist and professional public speaker, will be attempting to break a CF record for his Everesting attempt, while also creating awareness and raising funds for CF. “FIENDISHLY SIMPLE, YET BRUTALLY HARD....
As a physiotherapist with a special interest in CF and over 20 years’ experience one of the most common questions I get asked is, “What exercise should I be doing? Or what is the best exercise for my child?” This is both a simple but complex question. My simple...
Members of the CF New Frontiers Committee (CFNFC) engaged in a meeting with representatives from Vertex Pharmaceuticals on 16 September 2020. Representing South Africa on a national level, the CFNFC attendees consisted of doctors specializing in paediatric and adult...
CFNFC is the SACFA subcommittee tasked with facilitating access to affordable CF drugs for patients in South Africa, with an initial focus on CFTR modulators such as Trikafta. Over the past few months of research and legal consultation, the committee has formulated a...
Regular exercise plays a very important role in maintaining a healthy lifestyle for both CF patients as well as healthy individuals. A regular exercise routine helps an individual to maintain a healthy body weight, reduce their risk of developing comorbidities such as...
