It is with great pride and a collective sense of achievement that we present the SA CysticFibrosis Registry report for 2019-2020. The collection of data for this period coincided witha time in which healthcare provision and services for people with CF were severely...
The CFNF Committee has been engaging with Vertex and various stakeholders over the past twelve months to ascertain the affordability and access to Vertex’s modulator treatments, namely Trikafta and Kalydeco. The last engagement was held on the 23rd of September,...
The CF Medical and Scientific Advisory Committee in South Africa (MSAC) welcomes the news that people from 12 years of age in SA are now eligible for COVID-19 vaccination. Worldwide, including SA, COVID-19 and the pandemic has had a devastating impact on the health...
Tribute to Dr Klugman Dr Susan Klugman retired from the Johannesburg CF Paediatric Clinic (CMJAH) at the end of November 2020. Her retirement came after 32 years of commitment and dedication to the treatment of children with cystic fibrosis, as well as other chronic...
Jason van’t Slot, a Cystic Fibrosis warrior, extreme cyclist and professional public speaker, will be attempting to break a CF record for his Everesting attempt, while also creating awareness and raising funds for CF. “FIENDISHLY SIMPLE, YET BRUTALLY HARD....
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