The South African Cystic Fibrosis Registry – Report 2023

The fourth edition of the annual South African Cystic Fibrosis Registry marks another significant milestone in our collective journey to improve the lives of people with CF in South Africa. As the CF landscape continues to evolve, particularly with the advent of CFTR...

We Demand Access for All

It is regrettable that the SA Competition Commission has dropped the investigation against Vertex Pharmeceuticals. The reality is that Cystic fibrosis patients in South Africa face unequal access to life-saving treatments. While the recent agreement with Vertex is a...

Lifting Hearts: A Celebration of Generosity and Collaboration

Hello, dear friends and supporters of the South African Cystic Fibrosis Association (SACFA)! I’m Kimberly Keyzer, the chairperson of SACFA, and I’m excited to share with you my experience at a truly heartwarming event. On Thursday, November 7th, I had the...

Cystic Fibrosis Annual General Meeting Summary

Summary of the SACFA AGM 27 November 2024 This is a summary of the South African Cystic Fibrosis Association (SACFA) Annual General Meeting. The chairperson, Kimberly Keyzer, welcomed attendees and outlined the agenda, which included reports from various committee...

Cystic Fibrosis Annual Golf Day 2024: A Recap

Hello, everyone! Kimberly Keyzer here, Chairperson of the South African Cystic Fibrosis Association. I’m excited to share some highlights from our recent Cystic Fibrosis Annual Golf Day, held on Tuesday, November 12th. A Sunny Start to a Rainy Day The day...