Update on access to Trikafta from CFNFC

The CFNF Committee has been engaging with Vertex and various stakeholders over the past twelve months to ascertain the affordability and access to Vertex’s modulator treatments, namely Trikafta and Kalydeco. The last engagement was held on the 23rd of September,...

Tribute to a special doctor- Dr Sue Klugman

Tribute to Dr Klugman  Dr Susan Klugman retired from the Johannesburg CF Paediatric Clinic (CMJAH) at the end of November 2020. Her retirement came after 32 years of commitment and dedication to the treatment of children with cystic fibrosis, as well as other chronic...

Extreme Cyclist with CF attempts a CF Everesting record!

Jason van’t Slot, a Cystic Fibrosis warrior, extreme cyclist and professional public speaker, will be attempting to break a CF record for his Everesting attempt, while also creating awareness and raising funds for CF. “FIENDISHLY SIMPLE, YET BRUTALLY HARD....

The CF Registry – Annual Report

What is the registry for? Publishing of our first annual CF registry report for South Africa is testimony to the commitment of all CF doctors and CF families in our country, to promote the welfare of all our patients. The benefits of the registry are not always fully...
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