The 2023 Cape Town Cycle Tour, previously known as the Cape Argus, had two rare cyclists this year, Jason van’t Slot and Carmen Möller. Both have been diagnosed with cystic fibrosis, a rare inherited genetic disease that affects multiple organs in the body, primarily...
This third edition of the Cystic Fibrosis Registry Annual Report represents a great achievement for the South African Cystic Fibrosis (CF) community, who initiated the registry project in 2018. The relevance and importance of the registry and the information we...
Living with cystic fibrosis (CF) in South Africa can be challenging, but it also makes us unique. There are roughly 550 people who have been diagnosed with CF, though this figure may be slightly higher due to patients being undiagnosed or misdiagnosed in the past when...
#ShareYourRare In conjunction with #raredieseasemonth, SACFA thought we would explore what makes Cystic Fibrosis patients, and the disease, rare. If you haven’t heard of Cystic Fibrosis (CF) you can find more information on it on our website using the following...
To all those who historically attended the CMJAH Adult Cystic Fibrosis Clinic at Ward 496, please book follow up appointments at the CMJAH Adult Respiratory Clinic. This is a general respiratory clinic but you will be seen by a pulmonologist, have your medication...
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