Cycling the Cape Town Cycle Tour with Cystic Fibrosis

The 2023 Cape Town Cycle Tour, previously known as the Cape Argus, had two rare cyclists this year, Jason van’t Slot and Carmen Möller. Both have been diagnosed with cystic fibrosis, a rare inherited genetic disease that affects multiple organs in the body, primarily...

The CF Registry – Annual Report 2021

This third edition of the Cystic Fibrosis Registry Annual Report represents a great achievement for the South African Cystic Fibrosis (CF) community, who initiated the registry project in 2018. The  relevance and importance of the registry and the information we...

What makes CF Patients Rare?

#ShareYourRare In conjunction with #raredieseasemonth, SACFA thought we would explore what makes Cystic Fibrosis patients, and the disease, rare. If you haven’t heard of Cystic Fibrosis (CF) you can find more information on it on our website using the following...
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