A first chance at life after transplant- Fawn Rogers
Hello, I'm Fawn, Cystic Fibrosis owner, double lung transplant recipient and lover of life. I was born in Zimbabwe but I was the only CF patient in the country and had to travel often to see specialists and get my meds from SA. I eventually relocated...
Foods To Feed Your Face With- Tips from a post-transplant CF patient
As a CF who has always struggled with maintaining weight (even post transplant) I know my way around a kitchen and food aisle better than most. One of the biggest issues with having to eat SO MUCH is that we tend to run out of ideas on what to eat. We get bored of the...
CrossFit changed my life! – Louise Coney’s CF story
Where my story began I was diagnosed with Cystic Fibrosis at birth when I was born with a meconium Ileus, with the delta F508 mutation. My parents were told I would live till I was 7 years old….both being Engineers, and determined individuals, they decided to...
Cystic Fibrosis New Frontiers Committee (CFNFC) Update on Trikafta : July 2020
CFNFC is the SACFA subcommittee tasked with facilitating access to affordable CF drugs for patients in South Africa, with an initial focus on CFTR modulators such as Trikafta. Over the past few months of research and legal consultation, the committee has formulated a...
Exercise and CF
Regular exercise plays a very important role in maintaining a healthy lifestyle for both CF patients as well as healthy individuals. A regular exercise routine helps an individual to maintain a healthy body weight, reduce their risk of developing comorbidities such as...
Guilt ridden CF mom
Click The day my twins were born, something else was born too. It is a different kind of love. It is deeper, and it feels different. It is as if my heart is running outside my chest. Nobody could ever prepare me for how much motherhood will change me. But with that,...
Skuldgevoelens ry jou bloots – CF ma se perspektief
Die dag toe my tweeling gebore was, was die dag wat ‘n nuwe vlak, vorm en diepte van liefde ook gebore was. Niemand het my voorberei hoe baie moederskap my sal verander nie. Daarmee saam het nog ‘n gevoel gekom… skuldgevoelens oor amper alles. Dis...
17 year old CF life during the pandemic- from a Mom’s perspective
91 days... does not sound too long.... But what if you are 17 years old, very social, love life, friends and experiences... and yet, you may not have any of those. So let's let the wise people teach one life lessons. Let us tack our sails, shift...
Meet our newest contributors to the blog! Twins with a CF link!
Here's a bit of a different story on our website! We are so happy to welcome Nikki and Jay as blog contributors! Read more to find out about their connection to CF! Jay's post on nutrition is featured on this month's nutrition post and Nikki's post about CF and...
Nutrition in CF- Maintaining weight and diet tips for CFRD
Eating well, and maintaining a healthy body weight are vital for individuals with Cystic Fibrosis (CF). A good nutritional status has been directly linked to improved lung function, reduced chest infections and ultimately, improved survival rates. However, as many CF...