CrossFit changed my life! – Louise Coney’s CF story

CrossFit changed my life! – Louise Coney’s CF story

Where my story began I was diagnosed with Cystic Fibrosis at birth when I was born with a meconium Ileus, with the delta F508 mutation. My parents were told I would live till I was 7 years old….both being Engineers, and determined individuals, they decided to...

read more
Exercise and CF

Exercise and CF

Regular exercise plays a very important role in maintaining a healthy lifestyle for both CF patients as well as healthy individuals. A regular exercise routine helps an individual to maintain a healthy body weight, reduce their risk of developing comorbidities such as...

read more
Guilt ridden CF mom

Guilt ridden CF mom

Click The day my twins were born, something else was born too. It is a different kind of love. It is deeper, and it feels different. It is as if my heart is running outside my chest. Nobody could ever prepare me for how much motherhood will change me. But with that,...

read more
Guilt ridden CF mom

Skuldgevoelens ry jou bloots – CF ma se perspektief

Die dag toe my tweeling gebore was, was die dag wat ‘n nuwe vlak, vorm en diepte van liefde ook gebore was. Niemand het my voorberei hoe baie moederskap my sal verander nie. Daarmee saam het nog ‘n gevoel gekom… skuldgevoelens oor amper alles. Dis...

read more
Nutrition in CF- Maintaining weight and diet tips for CFRD

Nutrition in CF- Maintaining weight and diet tips for CFRD

Eating well, and maintaining a healthy body weight are vital for individuals with Cystic Fibrosis (CF). A good nutritional status has been directly linked to improved lung function, reduced chest infections and ultimately, improved survival rates. However, as many CF...

read more
Cystic Fibrosis New Frontiers Committee (CFNFC) Update on Trikafta : July 2020

What is the Cystic Fibrosis New Frontiers Committee?

The life expectancy of patients with cystic fibrosis (“CF”) has increased substantially over the past 20 years - this has been primarily due to successes in coordinated delivery of care, and advances in CF treatment. This treatment, however, only focuses on reducing...

read more

View by Category

Keep in touch via email updates


Share your story

Send it to mycf@sacfa.org.za
COVID-19 Portal