Celebrating the Heroes of the 2025 Cape Town Cycle Tour: Cycling4CF
Celebrating the Heroes of the 2025 Cape Town Cycle Tour: Cycling4CF At first light, on March 9, 2025, a group of extraordinary individuals rode out to tackle the unrelenting 109 kilometres of the Cape Town Cycle Tour. These cyclists, united under the banner of...
Thriving at University with Cystic Fibrosis: My Journey
Choosing My University and Course I chose my university based on a strong desire to return to the coast. My family is from East London and the north coast of Durban, and I wanted to be closer to my roots. More than that, I had grown tired of the big city life and the...
Cycle for CF in 2025
Are you a cyclist? Join us as we Cycle for CF in the 2025 Cape Town Cycle Tour! If cyclists want to enter, email Alan Dunn at info@sacfa.org.za Please include your full name, ID number and your package selection. Entries close 31 January 2025
The South African Cystic Fibrosis Registry – Report 2023
The fourth edition of the annual South African Cystic Fibrosis Registry marks another significant milestone in our collective journey to improve the lives of people with CF in South Africa. As the CF landscape continues to evolve, particularly with the advent of CFTR...
We Demand Access for All
It is regrettable that the SA Competition Commission has dropped the investigation against Vertex Pharmeceuticals. The reality is that Cystic fibrosis patients in South Africa face unequal access to life-saving treatments. While the recent agreement with Vertex is a...
Lifting Hearts: A Celebration of Generosity and Collaboration
Hello, dear friends and supporters of the South African Cystic Fibrosis Association (SACFA)! I'm Kimberly Keyzer, the chairperson of SACFA, and I'm excited to share with you my experience at a truly heartwarming event. On Thursday, November 7th, I had the privilege of...
Cystic Fibrosis Annual General Meeting Summary
Summary of the SACFA AGM 27 November 2024 This is a summary of the South African Cystic Fibrosis Association (SACFA) Annual General Meeting. The chairperson, Kimberly Keyzer, welcomed attendees and outlined the agenda, which included reports from various committee...
Cystic Fibrosis Annual Golf Day 2024: A Recap
Hello, everyone! Kimberly Keyzer here, Chairperson of the South African Cystic Fibrosis Association. I'm excited to share some highlights from our recent Cystic Fibrosis Annual Golf Day, held on Tuesday, November 12th. A Sunny Start to a Rainy Day The day started with...
Unexpected Moments – The Trikafta Journey
What's in a name? Trikafta (elexacaftor/tezacaftor/ivacaftor and ivacaftor), often referred to as ETI within the medical industry. Also known as "the miracle drug" for Cystic Fibrosis. This one little word, with many aliases, is packed with so much meaning and a mix...
The View from My Hospital Room
“Some people look for a beautiful place, others make a place beautiful.” Hazrat Inayat Khan Every person living with Cystic Fibrosis will have a different experience. Hospital stays, however, are a given for almost all. Often referred to as a “tune-up”, hospital stays...