Story from a CF teen
Hello – I am Dayyaan I turn 18 on the 5th July this year, and I have Cystic Fibrosis. So does my brother, Daniywal who is 13 years old. I live in the Western Cape, Surrey Estates, and presently attend Greenpoint Salesian Institute. I have many, many interests…...
Life with CF – How is it Treated
There is currently no cure for Cystic Fibrosis. While there are a lot of medical breakthroughs, treatment mostly involves trying to stop the progression. In South Africa, we do not have access to the latest modulator treatments that slow down the progression (yet)....
Tribute to a special doctor- Dr Sue Klugman
Tribute to Dr Klugman Dr Susan Klugman retired from the Johannesburg CF Paediatric Clinic (CMJAH) at the end of November 2020. Her retirement came after 32 years of commitment and dedication to the treatment of children with cystic fibrosis, as well as other chronic...
Beautiful farewell letter by a very special Doctor
My story – Dr Sue Klugman I joined the paediatric CYSTIC FIBROSIS clinic in 1989 as a very part time job, for four hours a week ,when the clinic was short staffed and needed an extra pair of hands. The whole field was new, strange and overwhelming to me. When Dr...
Extreme Cyclist with CF attempts a CF Everesting record!
Jason van’t Slot attempts a world record in extreme cycling!
Navigating Nutrition – with your young CF child
Navigating nutrition alongside your young child with CF can be very daunting, especially through transition phases. We chatted to Liezl Compion about a healthy parent approach to CF nutrition. Liezl lives in Still Bay and is a registered dietician and mom of three...
Exercise tips for CF from Physiotherapist Sue Naude
As a physiotherapist with a special interest in CF and over 20 years’ experience one of the most common questions I get asked is, “What exercise should I be doing? Or what is the best exercise for my child?” This is both a simple but complex question. My simple...
The CF Registry – Annual Report
What is the registry for? Publishing of our first annual CF registry report for South Africa is testimony to the commitment of all CF doctors and CF families in our country, to promote the welfare of all our patients. The benefits of the registry are not always fully...
Announcement of Closure of Adult CF Clinic at Charlotte Maxeke Hospital
The Joburg Adult CF Clinic at CMJAH has provided a high standard of treatment for around 40-60 adult state patients over a period of 17 years. The doctors have been funded by the SA Cystic Fibrosis Association Central Region over this time, with a funding requirement...
Ndumiso’s Story (part 2)
(Continued from part 1) Work and social life As we all know CF is a very challenging condition it needs someone who is financially stable. It affects you mentally and emotionally and it needs you to be strong and accept it and learn to live with it. I struggled a lot-...