Update on access to Trikafta from CFNFC

Update on access to Trikafta from CFNFC

The CFNF Committee has been engaging with Vertex and various stakeholders over the past twelve months to ascertain the affordability and access to Vertex's modulator treatments, namely Trikafta and Kalydeco. The last engagement was held on the 23rd of September, 2021....

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Finding out more about SACFA from Alan Dunn the chairperson

Finding out more about SACFA from Alan Dunn the chairperson

May is Cystic Fibrosis awareness month and we want to tell you more about the South African Cystic Fibrosis Association by asking Alan Dunn Chairperson of SACFA and SACFA Central Region (Gauteng) a few questions. Alan has been part of SACFA Central region since 1990,...

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Story from a CF teen

Story from a CF teen

Hello – I am Dayyaan I turn 18 on the 5th July this year, and I have Cystic Fibrosis.  So does my brother, Daniywal who is 13 years old. I live in the Western Cape, Surrey Estates, and presently attend Greenpoint Salesian Institute. I have many, many interests…...

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Life with CF – How is it Treated

Life with CF – How is it Treated

There is currently no cure for Cystic Fibrosis.  While there are a lot of medical breakthroughs, treatment mostly involves trying to stop the progression. In South Africa, we do not have access to the latest modulator treatments that slow down the progression (yet)....

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Tribute to a special doctor- Dr Sue Klugman

Tribute to a special doctor- Dr Sue Klugman

Tribute to Dr Klugman  Dr Susan Klugman retired from the Johannesburg CF Paediatric Clinic (CMJAH) at the end of November 2020. Her retirement came after 32 years of commitment and dedication to the treatment of children with cystic fibrosis, as well as other chronic...

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Tribute to a special doctor- Dr Sue Klugman

Beautiful farewell letter by a very special Doctor

My story – Dr Sue Klugman I joined the paediatric CYSTIC FIBROSIS clinic in 1989 as a very part time job, for four hours a week ,when the clinic was short staffed and needed an extra pair of hands. The whole field was new, strange and overwhelming  to me. When Dr...

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Navigating Nutrition –  with your young CF child

Navigating Nutrition – with your young CF child

Navigating nutrition alongside your young child with CF can be very daunting, especially through transition phases. We chatted to Liezl Compion about a healthy parent approach to CF nutrition. Liezl lives in Still Bay and is a registered dietician and mom of three...

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