SACFA and its affiliated doctors announcement on Trikafta

SACFA and its affiliated doctors announcement on Trikafta

It is with massive excitement that SACFA and its affiliated doctors can announce that a deal has been reached through a patient-support NGO to start supplying Trikafta® in full recommended dose to eligible patients with CF in SA who are on top-end medical aids (e.g....

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Cycling the Cape Town Cycle Tour with Cystic Fibrosis

Cycling the Cape Town Cycle Tour with Cystic Fibrosis

The 2023 Cape Town Cycle Tour, previously known as the Cape Argus, had two rare cyclists this year, Jason van’t Slot and Carmen Möller. Both have been diagnosed with cystic fibrosis, a rare inherited genetic disease that affects multiple organs in the body, primarily...

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The CF Registry – Annual Report 2021

The CF Registry – Annual Report 2021

This third edition of the Cystic Fibrosis Registry Annual Report represents a great achievement for the South African Cystic Fibrosis (CF) community, who initiated the registry project in 2018. The  relevance and importance of the registry and the information we...

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What makes CF Patients Rare?

What makes CF Patients Rare?

#ShareYourRare In conjunction with #raredieseasemonth, SACFA thought we would explore what makes Cystic Fibrosis patients, and the disease, rare. If you haven't heard of Cystic Fibrosis (CF) you can find more information on it on our website using the following link:...

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A reminder to adult CF patients who attend CMJAH

A reminder to adult CF patients who attend CMJAH

To all those who historically attended the CMJAH Adult Cystic Fibrosis Clinic at Ward 496, please book follow up appointments at the CMJAH Adult Respiratory Clinic.  This is a general respiratory clinic but you will be seen by a pulmonologist, have your medication...

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The CF Registry – Annual Report

The CF Registry – Annual Report

It is with great pride and a collective sense of achievement that we present the SA CysticFibrosis Registry report for 2019-2020. The collection of data for this period coincided witha time in which healthcare provision and services for people with CF were severely...

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Update on access to Trikafta from CFNFC

Update on access to Trikafta from CFNFC

The CFNF Committee has been engaging with Vertex and various stakeholders over the past twelve months to ascertain the affordability and access to Vertex's modulator treatments, namely Trikafta and Kalydeco. The last engagement was held on the 23rd of September, 2021....

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