17 year old CF life during the pandemic- from a Mom’s perspective
91 days... does not sound too long.... But what if you are 17 years old, very social, love life, friends and experiences... and yet, you may not have any of those. So let's let the wise people teach one life lessons. Let us tack our sails, shift...
Meet our newest contributors to the blog! Twins with a CF link!
Here's a bit of a different story on our website! We are so happy to welcome Nikki and Jay as blog contributors! Read more to find out about their connection to CF! Jay's post on nutrition is featured on this month's nutrition post and Nikki's post about CF and...
My CF journey – Clare Emms
Over the last few years, so much has happened in the CF world and so much has happened in my own life. Dean and I, who met in High School, got married at the end of 2012 on the 31 December and we celebrated our wedding while seeing in the New Year with all our closest...
Being a mom of a CF
Our baby boy Tinus was having a hard time breathing, but doctors kept telling me he had a couple of creche viruses – even after I told them that he isn’t even IN a creche! I just assumed he unfortunately inherited asthma from his daddy. Today I really wish that he...
Living with a child with CF (Layla-Rose)
Having been asked to write about this was a difficult thing to know where to start so let me start at the beginning. Every mom and parent dreams of a perfect happy little baby and see a bright happy future with them. Initially when you hear those word 'cystic...
Personal story by Alice Vogt
Alice Vogt (previously Vosloo) update – 10 years later I submitted my story to this website 10 years ago (see below), 10 months after my first bi-lateral lung transplant. The past decade has been absolutely brilliant, full of new things, sometimes scary and uncertain…...