Cycling the Cape Town Cycle Tour with Cystic Fibrosis
The 2023 Cape Town Cycle Tour, previously known as the Cape Argus, had two rare cyclists this year, Jason van’t Slot and Carmen Möller. Both have been diagnosed with cystic fibrosis, a rare inherited genetic disease that affects multiple organs in the body, primarily...
Finding out more about SACFA from Alan Dunn the chairperson
May is Cystic Fibrosis awareness month and we want to tell you more about the South African Cystic Fibrosis Association by asking Alan Dunn Chairperson of SACFA and SACFA Central Region (Gauteng) a few questions. Alan has been part of SACFA Central region since 1990,...
Story from a CF teen
Hello – I am Dayyaan I turn 18 on the 5th July this year, and I have Cystic Fibrosis. So does my brother, Daniywal who is 13 years old. I live in the Western Cape, Surrey Estates, and presently attend Greenpoint Salesian Institute. I have many, many interests…...
Life with CF – How is it Treated
There is currently no cure for Cystic Fibrosis. While there are a lot of medical breakthroughs, treatment mostly involves trying to stop the progression. In South Africa, we do not have access to the latest modulator treatments that slow down the progression (yet)....
Beautiful farewell letter by a very special Doctor
My story – Dr Sue Klugman I joined the paediatric CYSTIC FIBROSIS clinic in 1989 as a very part time job, for four hours a week ,when the clinic was short staffed and needed an extra pair of hands. The whole field was new, strange and overwhelming to me. When Dr...
Ndumiso’s Story (part 2)
(Continued from part 1) Work and social life As we all know CF is a very challenging condition it needs someone who is financially stable. It affects you mentally and emotionally and it needs you to be strong and accept it and learn to live with it. I struggled a lot-...
Ndumiso’s Story (part 1 of 2)
Ndumiso is from Zimbabwe, he now lives in Johannesburg, and is the first black CF person to join the CF Association. Ndumiso's story is very enlightening and shows his strength and bravery through adversity. He has been brave enough to write in English, which is not...
A first chance at life after transplant- Fawn Rogers
Hello, I'm Fawn, Cystic Fibrosis owner, double lung transplant recipient and lover of life. I was born in Zimbabwe but I was the only CF patient in the country and had to travel often to see specialists and get my meds from SA. I eventually relocated...
CrossFit changed my life! – Louise Coney’s CF story
Where my story began I was diagnosed with Cystic Fibrosis at birth when I was born with a meconium Ileus, with the delta F508 mutation. My parents were told I would live till I was 7 years old….both being Engineers, and determined individuals, they decided to...
Guilt ridden CF mom
Click The day my twins were born, something else was born too. It is a different kind of love. It is deeper, and it feels different. It is as if my heart is running outside my chest. Nobody could ever prepare me for how much motherhood will change me. But with that,...