What If We Could: A Global Mini Comrades for CF

What happens when someone dares to ask, “What if we could do something more?” The answer: an extraordinary global run inspired by the 6.5 for CF campaign - reimagined as a “mini Comrades.” Covering 10% of the legendary race distance, this challenge wasn’t just about...

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Spotlight: SACFA’s Patient Empowerment Manager

Spotlight: SACFA’s Patient Empowerment Manager

Meet Rida Viljoen: A Voice of Strength, Service, and Hope for the CF Community For most of her life, Rida Viljoen lived in the shadow of cystic fibrosis (CF). Cystic Fibrosis is a progressive genetic disease that affects the lungs and digestive system. Breathing...

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Thriving at University with Cystic Fibrosis: My Journey

Thriving at University with Cystic Fibrosis: My Journey

Choosing My University and Course I chose my university based on a strong desire to return to the coast. My family is from East London and the north coast of Durban, and I wanted to be closer to my roots. More than that, I had grown tired of the big city life and the...

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Unexpected Moments – The Trikafta Journey

Unexpected Moments – The Trikafta Journey

What's in a name? Trikafta (elexacaftor/tezacaftor/ivacaftor and ivacaftor), often referred to as ETI within the medical industry.  Also known as "the miracle drug" for Cystic Fibrosis. This one little word, with many aliases, is packed with so much meaning and a mix...

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The View from My Hospital Room

The View from My Hospital Room

“Some people look for a beautiful place, others make a place beautiful.” Hazrat Inayat Khan Every person living with Cystic Fibrosis will have a different experience. Hospital stays, however, are a given for almost all. Often referred to as a “tune-up”, hospital stays...

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