WELCOME TO SACFA

The South Africa Cystic Fibrosis Association (SACFA) is a Non-Profit Organisation, and as such is the primary cystic fibrosis support group and driver of advocacy for the treatment of cystic fibrosis in South Africa. Our objectives include communicating with the CF community, raising public awareness and promoting medical advancements. Fundraising is essential to sustain these objectives.

LATEST NEWS

CF Genes Day 2022

SACFA Central Region brings you the CF Genes Day event on the 25 May 2022. Let’s make an early start to get schools and companies involved in participating in this event. This event creates public awareness of cystic fibrosis in South Africa and helps raise...

What makes CF Patients Rare?

#ShareYourRare In conjunction with #raredieseasemonth, SACFA thought we would explore what makes Cystic Fibrosis patients, and the disease, rare. If you haven't heard of Cystic Fibrosis (CF) you can find more information on it on our website using the...

A reminder to adult CF patients who attend CMJAH

To all those who historically attended the CMJAH Adult Cystic Fibrosis Clinic at Ward 496, please book follow up appointments at the CMJAH Adult Respiratory Clinic.  This is a general respiratory clinic but you will be seen by a pulmonologist, have your...

The CF Registry – Annual Report

It is with great pride and a collective sense of achievement that we present the SA CysticFibrosis Registry report for 2019-2020. The collection of data for this period coincided witha time in which healthcare provision and services for people with CF were...

Update on access to Trikafta from CFNFC

The CFNF Committee has been engaging with Vertex and various stakeholders over the past twelve months to ascertain the affordability and access to Vertex's modulator treatments, namely Trikafta and Kalydeco. The last engagement was held on the 23rd of...

COVID vaccination in people with CF and their families: MSAC Advisory Statement

The CF Medical and Scientific Advisory Committee in South Africa (MSAC) welcomes the news that people from 12 years of age in SA are now eligible for COVID-19 vaccination. Worldwide, including SA, COVID-19 and the pandemic has had a devastating impact on the...
Share your story: Send it to mycf@sacfa.org.za

HELPFUL DOWNLOADS

Covid-19 Guidelines

These guidelines/FAQ’s regarding CF treatment during COVID-19 have been issued on 26 May 2020 by our SA Medical & Scientific Advisory Committee (MSAC). View it here

New? Find out about CF

A guide for parents and care-givers of children newly diagnosed with Cystic Fibrosis

Consensus Document

The South African Cystic Fibrosis Consensus Document – Fifth Edition

REGISTRY PROJECT

Health professionals are teaming up with the SA Cystic Fibrosis Association (SACFA) to establish a registry (or database) of people living with CF in SA. Please ask your doctor or CF clinic at your next checkup about how to sign up to the CF registry if you wish to participate. For more information click here

 

 

Summary report – 2019/2020

DOWNLOAD

Full report – 2019/2020

DOWNLOAD

WHAT WE DO

Share information and raise awareness

We share information to the public on cystic fibrosis via
various media channels and increase nationwide
awareness of CF and so promote early diagnosis

Improve treatment of cystic fibrosis

We assist in keeping medical staff up to date with the latest
advancements in treatment.

Support and advocacy

We provide support group structures and sustain
advocacy initiatives for proper treatment of cystic
fibrosis in South Africa.

Medical advisory group

We maintain a medical advisory group and create
other groups necessary for promoting advocacy for
cystic fibrosis treatment

Thank you to our sponsors

CONNECT

Share your story

Send it to mycf@sacfa.org.za

 

Keep in touch via email updates


Join our WhatsApp network

Only important information will be communicated on this group
Click here to join the SACFA WhatsApp Network

COVID-19 Portal