WELCOME TO SACFA

The South Africa Cystic Fibrosis Association (SACFA) is a Non-Profit Organisation, and as such is the primary cystic fibrosis support group and driver of advocacy for the treatment of cystic fibrosis in South Africa. Our objectives include communicating with the CF community, raising public awareness and promoting medical advancements. Fundraising is essential to sustain these objectives.

LATEST NEWS

Run or walk for CF

The team at Charlotte Maxeke's paediatric CF clinic have taken the initiative to raise awareness and funds during the CF Awareness Month (May).  A message from the team: "Many of our patients can not afford even basic nutritional or medical care. Funds...

CF Genes Day 2024

Join us for the CF Genes Day event hosted by SACFA on May 31, 2024. Let's kickstart the initiative by engaging schools and companies to participate in raising awareness for cystic fibrosis in South Africa and supporting the procurement of vital medical...

SACFA and its affiliated doctors announcement on Trikafta

It is with massive excitement that SACFA and its affiliated doctors can announce that a deal has been reached through a patient-support NGO to start supplying Trikafta® in full recommended dose to eligible patients with CF in SA who are on top-end medical...

Thank you for helping SACFA donate R230 000 to help cover Cheri Nel’s legal expenses

Cheri’s High Court application is an important step in gaining access to Trikafta (and generics) for all those who need it. This donation consists of funds raised at various fundraisers over 2022. These fundraiser include: Givengain Everesting for Cystic...

SACFA – AGM 2023

CF families, doctors and medical support staff are invited to attend the annual general meeting of the SA Cystic Fibrosis Association. Date: Wednesday, 29 November 2023Time: Join 18:45 - 19:00 StartVenue: Online - Zoom (registration link below):   You are...

Cycling the Cape Town Cycle Tour with Cystic Fibrosis

The 2023 Cape Town Cycle Tour, previously known as the Cape Argus, had two rare cyclists this year, Jason van’t Slot and Carmen Möller. Both have been diagnosed with cystic fibrosis, a rare inherited genetic disease that affects multiple organs in the body,...
Share your story: Send it to mycf@sacfa.org.za

HELPFUL DOWNLOADS

Covid-19 Guidelines

These guidelines/FAQ’s regarding CF treatment during COVID-19 have been issued on 26 May 2020 by our SA Medical & Scientific Advisory Committee (MSAC). View it here

New? Find out about CF

A guide for parents and care-givers of children newly diagnosed with Cystic Fibrosis

Consensus Document

The South African Cystic Fibrosis Consensus Document – Fifth Edition

REGISTRY PROJECT

Health professionals are teaming up with the SA Cystic Fibrosis Association (SACFA) to establish a registry (or database) of people living with CF in SA. Please ask your doctor or CF clinic at your next checkup about how to sign up to the CF registry if you wish to participate. For more information click here

 

 

Summary report – 2021

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Full report – 2021

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WHAT WE DO

Share information and raise awareness

We share information to the public on cystic fibrosis via
various media channels and increase nationwide
awareness of CF and so promote early diagnosis

Improve treatment of cystic fibrosis

We assist in keeping medical staff up to date with the latest
advancements in treatment.

Support and advocacy

We provide support group structures and sustain
advocacy initiatives for proper treatment of cystic
fibrosis in South Africa.

Medical advisory group

We maintain a medical advisory group and create
other groups necessary for promoting advocacy for
cystic fibrosis treatment

Thank you to our sponsors

CONNECT

Share your story

Send it to mycf@sacfa.org.za

 

Keep in touch via email updates


Join our WhatsApp network

Only important information will be communicated on this group
Click here to join the SACFA WhatsApp Network

Follow us on Instagram and Facebook

COVID-19 Portal