WELCOME TO SACFA
The South Africa Cystic Fibrosis Association (SACFA) is a Non-Profit Organisation, and as such is the primary cystic fibrosis support group and driver of advocacy for the treatment of cystic fibrosis in South Africa. Our objectives include communicating with the CF community, raising public awareness and promoting medical advancements. Fundraising is essential to sustain these objectives.
Strength in Unity: How the Cystic Fibrosis Community in South Africa Overcomes Rarity Through Solidarity.
Share your story: Send it to firstname.lastname@example.org
These guidelines/FAQ’s regarding CF treatment during COVID-19 have been issued on 26 May 2020 by our SA Medical & Scientific Advisory Committee (MSAC). View it here
New? Find out about CF
A guide for parents and care-givers of children newly diagnosed with Cystic Fibrosis
The South African Cystic Fibrosis Consensus Document – Fifth Edition
Health professionals are teaming up with the SA Cystic Fibrosis Association (SACFA) to establish a registry (or database) of people living with CF in SA. Please ask your doctor or CF clinic at your next checkup about how to sign up to the CF registry if you wish to participate. For more information click here
WHAT WE DO
Share information and raise awareness
We share information to the public on cystic fibrosis via
various media channels and increase nationwide
awareness of CF and so promote early diagnosis
Improve treatment of cystic fibrosis
We assist in keeping medical staff up to date with the latest
advancements in treatment.
Support and advocacy
We provide support group structures and sustain
advocacy initiatives for proper treatment of cystic
fibrosis in South Africa.
Medical advisory group
We maintain a medical advisory group and create
other groups necessary for promoting advocacy for
cystic fibrosis treatment