WELCOME TO SACFA

The South Africa Cystic Fibrosis Association (SACFA) is a Non-Profit Organisation, and as such is the primary cystic fibrosis support group and driver of advocacy for the treatment of cystic fibrosis in South Africa. Our objectives include communicating with the CF community, raising public awareness and promoting medical advancements. Fundraising is essential to sustain these objectives.

LATEST NEWS

CF Awareness frame 2026

Update your profile picture with our CF Awareness Frame May is Cystic Fibrosis Awareness Month  Cystic Fibrosis (CF) is a rare genetic condition that makes it hard to breathe and affects many parts of the body. In South Africa, too many families face this...
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CF Genes Day 2026

Join SACFA for CF Genes Day on May 22, 2026! Raise awareness for cystic fibrosis, support vital medical equipment, and make a difference—one denim day at a time. Donate, get your sticker, and spread the word! #CFGenesDay2026

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Cycle for CF in 2026

Are you a cyclist? Join us as we Cycle for CF in the 2026 Cape Town Cycle Tour!  If cyclists want to enter, email Alan Dunn at info@sacfa.org.za Please include your full name, ID number and your package selection. Entries close 31 January 2026
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More Than Just Sparkle: How Coji with Love Illuminates Lives at the SA Cystic Fibrosis Clinic

”…if you can just learn how to be, you will be okay.” – Jodi, CF Warrior, gone but never forgotten. These were the final words that inspired this business – and continue to underpin its values. Here in Gauteng, South Africa, there's a special kind of...
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On 7 August We Took Action: Access Not Secured

Health advocates urge SA Competition Commission to reopen Vertex Trikafta case over unequal cystic fibrosis treatment access.

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Access for the Privileged

Health advocates urge SA Competition Commission to reopen Vertex Trikafta case over unequal cystic fibrosis treatment access.

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Share your story: Send it to info@sacfa.org.za

HELPFUL DOWNLOADS

Covid-19 Guidelines

These guidelines/FAQ’s regarding CF treatment during COVID-19 have been issued on 26 May 2020 by our SA Medical & Scientific Advisory Committee (MSAC). View it here

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New? Find out about CF

A guide for parents and care-givers of children newly diagnosed with Cystic Fibrosis

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Consensus Document

The South African Cystic Fibrosis Consensus Document – Fifth Edition

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REGISTRY PROJECT

Health professionals are teaming up with the SA Cystic Fibrosis Association (SACFA) to establish a registry (or database) of people living with CF in SA. Please ask your doctor or CF clinic at your next checkup about how to sign up to the CF registry if you wish to participate. For more information click here

 

 

Summary report – 2023

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Full report – 2023

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WHAT WE DO

Share information and raise awareness

We share information to the public on cystic fibrosis via
various media channels and increase nationwide
awareness of CF and so promote early diagnosis

Improve treatment of cystic fibrosis

We assist in keeping medical staff up to date with the latest
advancements in treatment.

Support and advocacy

We provide support group structures and sustain
advocacy initiatives for proper treatment of cystic
fibrosis in South Africa.

Medical advisory group

We maintain a medical advisory group and create
other groups necessary for promoting advocacy for
cystic fibrosis treatment

Thank you to our sponsors

CONNECT

Keep in touch via email updates


Join our WhatsApp network

Only important information will be communicated on this group
Click here to join the SACFA WhatsApp Network

Follow us on Instagram and Facebook

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