WELCOME TO SACFA

The South Africa Cystic Fibrosis Association (SACFA) is a Non-Profit Organisation, and as such is the primary cystic fibrosis support group and driver of advocacy for the treatment of cystic fibrosis in South Africa. Our objectives include communicating with the CF community, raising public awareness and promoting medical advancements. Fundraising is essential to sustain these objectives.

LATEST NEWS

F.R.I.E.N.D.S Online Quiz

The Cystic Fibrosis Association invite you to join our online F.R.I.E.N.D.S quiz night fund raiser to help make a difference to those with CFInvite your friends and come have some fun while supporting a great cause.Date: Thursday 20 May 2021Time:...

CF Genes Day Raffle

Support the Cystic Fibrosis (CF) Association and stand a chance to win a pair of jeans worth R1200! The closing date for the competition is at midnight on 26 May 2021 and the winner will be announced on 31 May 2021. Get your tickets below and enter now!!...

Life with CF – How is it Treated

There is currently no cure for Cystic Fibrosis.  While there are a lot of medical breakthroughs, treatment mostly involves trying to stop the progression. In South Africa, we do not have access to the latest modulator treatments that slow down the...

Coffee with moms of CF

The South African Cystic Fibrosis Association invites you to our very first Coffee with moms of CF. This will be a virtual event where you can make your favourite drink, sit back and enjoy the company of other mothers.We have two lovely speakers Clare Emms...

Tribute to a special doctor- Dr Sue Klugman

Tribute to Dr Klugman  Dr Susan Klugman retired from the Johannesburg CF Paediatric Clinic (CMJAH) at the end of November 2020. Her retirement came after 32 years of commitment and dedication to the treatment of children with cystic fibrosis, as well as...
Share your story: Send it to mycf@sacfa.org.za

HELPFUL DOWNLOADS

Covid-19 Guidelines

These guidelines/FAQ’s regarding CF treatment during COVID-19 have been issued on 26 May 2020 by our SA Medical & Scientific Advisory Committee (MSAC). View it here

New? Find out about CF

A guide for parents and care-givers of children newly diagnosed with Cystic Fibrosis

Consensus Document

The South African Cystic Fibrosis Consensus Document – Fifth Edition

REGISTRY PROJECT

Health professionals are teaming up with the SA Cystic Fibrosis Association (SACFA) to establish a registry (or database) of people living with CF in SA. Please ask your doctor or CF clinic at your next checkup about how to sign up to the CF registry if you wish to participate. For more information click here

Summary report – 2018

DOWNLOAD

Full report – 2018

DOWNLOAD

WHAT WE DO

Share information and raise awareness

We share information to the public on cystic fibrosis via
various media channels and increase nationwide
awareness of CF and so promote early diagnosis

Improve treatment of cystic fibrosis

We assist in keeping medical staff up to date with the latest
advancements in treatment.

Driver of advocacy

We provide support group structures and sustain
advocacy initiatives for proper treatment of cystic
fibrosis in South Africa.

Medical advisory group

We maintain a medical advisory group and create
other groups necessary for promoting advocacy for
cystic fibrosis treatment

Thank you to our sponsors

CONNECT

Share your story

Send it to mycf@sacfa.org.za

 

Keep in touch via email updates


Join our WhatsApp network

Only important information will be communicated on this group
Click here to join the SACFA WhatsApp Network

COVID-19 Portal