WELCOME TO SACFA

The South Africa Cystic Fibrosis Association (SACFA) is a Non-Profit Organisation, and as such is the primary cystic fibrosis support group and driver of advocacy for the treatment of cystic fibrosis in South Africa. Our objectives include communicating with the CF community, raising public awareness and promoting medical advancements. Fundraising is essential to sustain these objectives.

LATEST NEWS

Virtual 6.5km Challenge for Cystic Fibrosis

Support the South African Cystic Fibrosis Association by walking, running or riding 6.5km! Buy your ticket during the month of October and share your video, photo or virtual racing app screenshot on our social media.Date: 1 - 31 October 2021Per person:...

I can eat while I sleep, what is your superpower? – A story about feeding tubes and CF

I can eat while I sleep, what is your superpower? All people need food to live. Sometimes a person cannot eat enough food to keep up with what his/her body needs when it is suffering from an illness. When this occurs, nutrition may be supplied in a different...

Finding out more about SACFA from Alan Dunn the chairperson

May is Cystic Fibrosis awareness month and we want to tell you more about the South African Cystic Fibrosis Association by asking Alan Dunn Chairperson of SACFA and SACFA Central Region (Gauteng) a few questions. Alan has been part of SACFA Central region...

Story from a CF teen

Hello – I am Dayyaan I turn 18 on the 5th July this year, and I have Cystic Fibrosis.Β  So does my brother, Daniywal who is 13 years old. I live in the Western Cape, Surrey Estates, and presently attend Greenpoint Salesian Institute. I have many, many...

Life with CF – How is it Treated

There is currently no cure for Cystic Fibrosis.Β  While there are a lot of medical breakthroughs, treatment mostly involves trying to stop the progression. In South Africa, we do not have access to the latest modulator treatments that slow down the...
Share your story: Send it to mycf@sacfa.org.za

HELPFUL DOWNLOADS

Covid-19 Guidelines

These guidelines/FAQ’s regarding CF treatment during COVID-19 have been issued on 26 May 2020 by our SA Medical & Scientific Advisory Committee (MSAC). View it here

New? Find out about CF

A guide for parents and care-givers of children newly diagnosed with Cystic Fibrosis

Consensus Document

The South African Cystic Fibrosis Consensus Document – Fifth Edition

REGISTRY PROJECT

Health professionals are teaming up with the SA Cystic Fibrosis Association (SACFA) to establish a registry (or database) of people living with CF in SA. Please ask your doctor or CF clinic at your next checkup about how to sign up to the CF registry if you wish to participate. For more information click here

Summary report – 2018

DOWNLOAD

Full report – 2018

DOWNLOAD

WHAT WE DO

Share information and raise awareness

We share information to the public on cystic fibrosis via
various media channels and increase nationwide
awareness of CF and so promote early diagnosis

Improve treatment of cystic fibrosis

We assist in keeping medical staff up to date with the latest
advancements in treatment.

Support and advocacy

We provide support group structures and sustain
advocacy initiatives for proper treatment of cystic
fibrosis in South Africa.

Medical advisory group

We maintain a medical advisory group and create
other groups necessary for promoting advocacy for
cystic fibrosis treatment

Thank you to our sponsors

CONNECT

Share your story

Send it to mycf@sacfa.org.za

 

Keep in touch via email updates


Join our WhatsApp network

Only important information will be communicated on this group
Click here to join the SACFA WhatsApp Network

COVID-19 Portal