WELCOME TO SACFA

Cystic Fibrosis (CF), is an inherited genetic disease that affects a number of organs in the body, primarily the lungs and pancreas by clogging them with thick and sticky mucus.

MARK YOUR CALENDAR

Click on the icons below to add that event to your calendar

Add to calendarCycle4CF Challenge – Gauteng
1 – 30 Nov 2020

Tribute to a special doctor- Dr Sue Klugman

Tribute to Dr Klugman  Dr Susan Klugman retired from the Johannesburg CF Paediatric Clinic (CMJAH) at the end of November 2020. Her retirement came after 32 years of commitment and dedication to the...

A first chance at life after transplant- Fawn Rogers

Hello, I'm Fawn, Cystic Fibrosis owner, double lung transplant recipient and lover of life.    I was born in Zimbabwe but I was the only CF patient in the country and had to travel...

Beautiful farewell letter by a very special Doctor

My story – Dr Sue Klugman I joined the paediatric CYSTIC FIBROSIS clinic in 1989 as a very part time job, for four hours a week ,when the clinic was short staffed and needed an extra pair of hands....
 

Cycle4CF Virtual Challenge

November 2020

Click here to support us!

 

 

 

Research May Explain Why Different CF Bacteria Infect at Certain Ages

 

New research unveils why the bacteria Pseudomonas aeruginosa cause sustained infections in younger cystic fibrosis (CF) patients, while the bacteria Burkholderia cepacia complex infects patients as teenagers and adults.

Read more

 

COVID-19 Guidelines

 

Click here to view

HELPFUL DOWNLOADS


Covid-19 Guidelines

These guidelines/FAQ’s regarding CF treatment during COVID-19 have been issued on 26 May 2020 by our SA Medical & Scientific Advisory Committee (MSAC). View it here


Finding Out

A guide for parents and care-givers of children newly diagnosed with Cystic Fibrosis


Consensus Document

The South African Cystic Fibrosis Consensus Document – Fifth Edition

REGISTRY PROJECT

Health professionals are teaming up with the SA cystic Fibrosis Association (SACFA) to establish a registry (or database) of people living with CF in SA. Please ask your doctor or CF clinic at your next checkup about how to sign up to the CF registry if you wish to participate. For more information click here

Summary report – 2018

DOWNLOAD

Full report – 2018

DOWNLOAD

SPONSORS

COVID-19 Portal