WELCOME TO SACFA

Cystic Fibrosis (CF), is an inherited genetic disease that affects a number of organs in the body, primarily the lungs and pancreas by clogging them with thick and sticky mucus.

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Add to calendarCycle4CF Challenge – Gauteng
1 – 30 Nov 2020

My CF journey – Clare Emms

Over the last few years, so much has happened in the CF world and so much has happened in my own life. Dean and I, who met in High School, got married at the end of 2012 on the 31 December and we...

What is the Cystic Fibrosis New Frontiers Committee?

The life expectancy of patients with cystic fibrosis (“CF”) has increased substantially over the past 20 years - this has been primarily due to successes in coordinated delivery of care, and...

CF New Frontiers Project : Vertex Update

Members of the CF New Frontiers Committee (CFNFC) engaged in a meeting with representatives from Vertex Pharmaceuticals on 16 September 2020. Representing South Africa on a national level, the CFNFC...
 

Cycle4CF Virtual Challenge

November 2020

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Research May Explain Why Different CF Bacteria Infect at Certain Ages

 

New research unveils why the bacteria Pseudomonas aeruginosa cause sustained infections in younger cystic fibrosis (CF) patients, while the bacteria Burkholderia cepacia complex infects patients as teenagers and adults.

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COVID-19 Guidelines

 

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HELPFUL DOWNLOADS


Covid-19 Guidelines

These guidelines/FAQ’s regarding CF treatment during COVID-19 have been issued on 26 May 2020 by our SA Medical & Scientific Advisory Committee (MSAC). View it here


Finding Out

A guide for parents and care-givers of children newly diagnosed with Cystic Fibrosis


Consensus Document

The South African Cystic Fibrosis Consensus Document – Fifth Edition

REGISTRY PROJECT

Health professionals are teaming up with the SA cystic Fibrosis Association (SACFA) to establish a registry (or database) of people living with CF in SA. Please ask your doctor or CF clinic at your next checkup about how to sign up to the CF registry if you wish to participate. For more information click here

Summary report – 2018

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Full report – 2018

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